What To Do After a Dementia Diagnosis: Essential Steps for Families

Receiving a dementia diagnosis for yourself or a loved one can trigger a flood of emotions—anxiety, sadness, anger, or even relief at finally having an explanation for troubling changes. With millions of dementia cases diagnosed each year, you may feel isolated as you navigate what this means for your family. While emotions may feel overwhelming, you can regain control by taking practical steps to plan for the future while cherishing the present.

Educate Yourself with Reliable Information

Knowledge is power when facing a dementia diagnosis. Avoid falling into anxiety by seeking accurate information from trusted sources. Connect with your primary care physician or neurologist, reach out to your local Alzheimer's Association chapter, and explore reputable online resources like the Mayo Clinic and National Institute on Aging. Be cautious of social media posts and unverified online claims—always verify information through reliable sources.

Prioritize Safety at Home

Many individuals are now diagnosed earlier in the disease progression, allowing them to remain safely at home with proper support. Consider practical safety measures like pill organizers to prevent medication errors, daily check-in systems via phone or video calls, and safety knobs on stove controls. Medical alert devices with GPS technology can provide peace of mind if your loved one becomes confused or lost. Simple organizational tools, such as reminder notes on the refrigerator or simplified clothing choices, can reduce daily overwhelm.

Build Your Support Team

Managing dementia requires a village. Assemble a team of trusted professionals including your primary care physician, neurologist, therapists, home care agencies, financial advisors, and elder law attorneys. Keep all contact information accessible both digitally and on paper. Don't forget to rally friends, family, and neighbors who can help with everyday tasks like meal deliveries, transportation, or companionship visits.

Get Organized with Medical Appointments

A dementia diagnosis often comes with numerous follow-up appointments. Take control by dedicating one day each month to schedule the next month's appointments. Use shared digital calendars like Google Calendar to coordinate with family members and caregivers, including important details like parking information and discussion topics. When possible, consolidate multiple appointments on the same day and enjoy a meal together in between.

Update Legal and Financial Plans

If diagnosed early, empower your loved one by reviewing estate planning documents. Schedule an appointment with an elder law attorney to update wills, power of attorney designations, and advance directives. Ensure family members understand your loved one's wishes and know where to locate important documents.

Access Community Resources and Self-Care

You're not alone in this journey. Connect with local resources like Meals on Wheels, your Area Agency on Aging, and senior services departments. Caregiver support groups offer invaluable emotional support and practical advice. Don't neglect your own mental health—consider regular therapy sessions to process your feelings and develop coping strategies.

Plan for the Future While Staying Present

Begin exploring long-term care options early, whether in-home care or memory care communities. Work with financial planners to understand costs and potential resources like long-term care insurance or veterans benefits. Most importantly, make time to simply be with your loved one—share coffee, take walks, or sit quietly together. These moments of connection matter most.

Connections to Care is here to support you through every step of this journey. Contact us today to learn how we can help your family navigate dementia care with compassion and expertise. (864) 549-0023. Book Discovery Call.